February 27, 2024 – Rare Diseases in Canada
Virtual Panel on Rare Diseases
Hosted by the Honourable Senator Marie-Françoise Mégie
Tuesday, February 27, 2024
12:00pm – 1:30pm ET
Rare Diseases in Canada
Rare diseases pose unique challenges due to their low prevalence, diverse nature, and often complex medical profiles. This gathering, held in celebration of Rare Disease Day 2024, brings together leading researchers, health innovation stakeholders, and policy makers to shine a spotlight on the impact sustained research and innovation can have. Join us for a meaningful discussion that can drive positive change. With the event host the Honourable Senator Marie-Françoise Mégie and special guest the Honourable Senator Mohamed-Iqbal Ravalia, this promises to be an engaging event you won’t want to miss!
To register, please click here.
If you have any questions about this event, please email us at firstname.lastname@example.org.
Meet the Host, the Honourable Senator Marie-Françoise Mégie
Senator Marie-Françoise Mégie was appointed to the Senate on November 25, 2016, by the Right Honourable Justin Trudeau. Senator Mégie represents the province of Québec and the Senatorial Division of Rougemont.
Senator Mégie’s professional career encompasses over 35 years as a family physician and nearly 30 years as a university professor. Born in Haiti, she arrived in Quebec in 1976, and rose through the ranks of the medical profession while also pursuing university teaching, becoming a clinical associate professor in the Department of Family Medicine at the University of Montréal.
Meet the Researchers
The moderated session will feature six distinguished health researchers representing various national health organizations, universities, and institutes across Canada. Leading the discussions will be Alison Evans, the President and CEO of Research Canada. Topics of discussion for rare diseases in Canada may include challenges in diagnosis and treatment, access to specialized care and therapies, funding for research and development, and strategies for improving patient support and advocacy.
President and CEO